I’ve gone back and forth about how much of my actual illness to detail on here. Part of me wants to keep this page as a place that brings me joy, and my fear is that detailing too much might instead make it a place that brings up memories that I would rather forget.
The other side of that though, and the side that ultimately won the debate, is that I don’t think there is enough available information about the various ways Lyme can effect the body. Therefore I’ve compiled the below list of my symptoms in the hope that I can raise even the smallest amount of awareness about this devastating illness.
First a disclaimer tho: I’m not in the medical field and I’m not qualified to give any sort of official information / advice. This is just my experience from the patient perspective. Also, everyone is effected differently. I have Lyme as well as two co-infections which could make my experience unique to others. Also note, I was first diagnosed with Fibromyalgia and Chronic Fatigue Syndrome before meeting with my LLMD and most of these symptoms have since decreased significantly with Lyme treatment (some have even been eliminated).
- Chest pain
- Rapid heart response
- Difficulty breathing while lying down
- Air hunger
- Shortness of Breath
- Joint swelling and redness
- Weakness in the extremities
- Muscle and bone pain
- Numbness and tingling
- Brain fog and confusion
- Minimal short term memory loss
- Hair loss
- MAST Cell issues
- Erythromelalgia (or similar presentation) (see photo below)
- Circulatory issues (see photo below)